Our mission is to support children and adults that are blind or visually impaired due to CRB1 LCA/RP through funding research to treat this rare eye disease as well as connect those affected to resources for succeeding without sight. We are parents, patients and professionals working together to achieve these goals.
The Curing Retinal Blindness Foundation is the only patient organization for CRB1 disease. Our patients are blind or visually impaired due to mutations in the CRB1 gene causing a rare, genetic, degenerative retinal disease (Leber’s Congenital Amaurosis, Retinitis Pigmentosa, or cone-rod dystrophy) Some of the children have already lost most of their sight. Many of the patients still have some useable vision, but it will deteriorate if nothing is done to stop the degeneration.
The CRBF Family of families and professionals is here to help you navigate through the first steps of the diagnosis, the education process, and ultimately, the paths to cures. Please let us know how we can help you through it all.
Be part of a community dedicated to curing retinal blindness before it’s too late. Learn, act, and spread awareness with the help of Vako Gen AI and CFF. Together, we can beat retinal blindness !